trialia: Ziva David (Cote de Pablo), head down, hair wind-streamed, eyes almost closed. (Default)
Tria ([personal profile] trialia) wrote in [personal profile] megwrites 2010-06-28 07:30 pm (UTC)

Thank you very much for responding to my concerns with your entry so quickly and comprehensively. I really, really appreciate that.

I haven't many spoons today, I'm afraid (bad flare day), so my reply may not be as detailed as I'd like it to be. But, from your response, I feel I understand your concerns much better than in the original entry. This comment clarifies a lot for me, and I can sympathise with how you feel, too. I don't like the idea of erasure, and where to draw the line with this kind of thing always bothers me.

Would I like my rapid-cycling bipolar disorder to be manageable? Of course. Would I want it taken away? Perhaps not, since the attempts that have been made have stifled my creativity to the point where I couldn't bear it. But for people who could start out with no disabling conditions and have that option, to stay as healthy as possible without ever developing any... well, I think *that* would be utopian in the most ideal sense of the word. Not erasure, but healing, for the conditions that a majority of informed and people concerned really feel may *need* it. Manageability without outwardly-imposed limitation. Does that make sense?

Oh, and by the way, I love the variations you chose! Why? Well, in the interests of full disclosure (and mild entertainment on my part), I have all three examples you chose: rapid-cycling untyped bipolar disorder, mild Asperger's, and fibromyalgia. -- On top of that, a spinal neuropathic injury and hypermobility Ehlers-Danlos syndrome, though the fibromyalgia is a secondary condition to both of those, along with asthma, migraines and Raynaud's syndrome.

Anyway, thank you profusely for clarifying your post - it makes your views a lot more understandable for me. I think I have a touch of fibro-fog today along with the bad pain day (gotta love being cis-female sometimes, eh?), so please forgive me if I came across as overly challenging to your viewpoint at all. I simply wanted to understand you better, to see how your views intersect with mine, and now I think I do. ♥

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